My son has just spent the last three weeks in hospital and has been diagnosed with Crohns,,,, just wondering if there is anyone else on these boards whose son/daughter has the same,,,, some advice and friendship would be appreciated as just feel so alone in alll of this. Thanks for reading.
Hi there Sorry to hear about your son, you will be given alot of help and support on here, there is also a couple of other sites you may want to try which i find very helpful, and they have chat nights, which is on a sunday so you can chat to everyone ask as many questions has you want thats www.crohnszone.org you will have to register, also there is very good information site called www.nacc.org.uk . hope this and the other sites help you out, Im the same name on all the sites Tattyteds68 , keep in touch and let me know how you go. XXXSUEXXX
Hi Easnic. Your son will need a lot of support and understanding to cope with this, but you yourself will find it difficult too because your son will not want to let you know about the bad bits ,I.E. getting caught for the toilet, reluctance to go anywhere where he does not know where the toilets are, and other things. you need to try to understand how he feels and that is where this forum helps, don`t be afraid to ask anything. My husband has supported me for the last 20 odd years but it took him a wee while to cope with it. Hope this gives you some idea of what is ahead. good luck!!!!
Hi there, my son Callum is 13 now but was diagnosed with Crohns a week after his 12th birthday last year. How old is your son?
We've tried Modulen, Budesonide, Prednisolone, and now Azathiaprine (immunosuppressant) and the Aza seems to be the one doing the trick, been in remission for a month now.
We've been to hell and back, so if you want to know anything, just ask.
Thank for your reply sorry its taken me so long to reply back to you,,,, my son is currently back in hospital i think since January he has spent two weeks at home,,,, he is 19 so not really a child,, he also has adhd, My son was on budesonide,, he know takes Prednisone and aza,,,not sure what they will do this time while he is in hospital,, he has been waiting since Sunday to see his gastro consultant so hopefully he will see him soon and then we will know what they decide to do.
Do not alter or start any medications or other remedies without first consulting a medical professional. Remember that we are not medical professionals, but merely fellow sufferers offering the benefit of our collective experience.