Hello again everyone, I've changed from AZA which made me feel so sick and ill constantly shivering or sweating etc. Been on 6-MP for a couple of weeks and feel more fatigued than ever, barely going out, bed at 9pm that kind of thing. Just wondered if anyone had similar experience and does it get any better? I'm on 50mg per day, don't think dose will increase coz I'm quite small, taking 20mg of pred too but on my way down (been on 40mg for ages, not really helped) Just would love to know if this will get any better, it's soul destroying, ill without drugs, worse on them! Feeling really low and would be very grateful for any advice or info from anyone who has had similar experience, thanks as always

Hi

I was on 6MCP for 3 weeks and became extremely ill.  I actually spent most days in bed, couldn't do very must without the fatigue taking hold of me.  I actually thought I was dying.  Eventually came off it and cleared up overnight.  My consultant has made a note never to put me on it again.  I didn't have any success with Aza either, ame experience as you.  Now on methotrexate - self injecting.  Little bit of fatigue for a few days after injection but not comparible to previous reaction on  6MCP.  About to start Infliximab also.  

Don't put up with it - get hold of your IBD nurse or consultant, as I just got worse as the days went on.

Take care and good luck.
Lou x

Im going on Aza.
But dont want too.
I hate the idea of taking drugs all the time.
  

Hi There, I went onto 6mp after i couldn't tolerate Aza, 6mp was even worse, unbelievably tired and constantly feeling sick, eating food was a mission everyday cos i just was never hungry, gave it up after 2 months just before Christmas, going onto methotrexate soon, hopefully this will be a bit better.