follied with stomach aches 

i have  just had a bowl resection  have been on biollogics and it hasn’t helped. I have had every test under the Sun but still can’t stop being sick.

I am a psychology researcher at the University of York (North Yorkshire) with my projects funded by the Economic and Social Research Council. You can see my research profile here, and see my research website here,  which includes my web page for participant recruitment here. 

About my research: 

I am recruiting participants to take part in an online survey. The survey is centered around how people interpret the sensations they get from their body. This data is being collected to refine a new questionnaire that asks people about their emotional reaction to sensations from the stomach that signal states such as hunger, satiation, and fullness; gastric interoceptive evaluation. This questionnaire has been developed to better understand if gastric interoceptive evaluation is a source of psychological distress for people with gastrointestinal disorders.

Taking part involves 1) completing an online survey that asks questions about the sensations people get from their body and stomach, gastric interoceptive evaluation, and their gastrointestinal symptoms, and 2) completing the gastric interoceptive evaluation questionnaire (only) again a week later. This whole process is expected to take up to 20 minutes. There are x4 £50 Amazon e-vouchers to be won in a prize draw for completing the interoceptive evaluation questionnaire (only) again a week later. 

To take part, participants must:  

• Be aged 18+

• Identify as having a gastric disorder (have a current diagnosis or think you have one. However, no proof of diagnosis is needed. We recognise that symptoms can be experienced without a formal diagnosis.) 

• Be fluent in English 

• Live in the UK

The survey can be accessed via this link, which includes the information sheet, declaration of consent, and sources of support: https://york.qualtrics.com/jfe/form/SV_0vwfUyvV5r2tGWq

Or can be accessed via the Crohn's and Colitis UK website: https://crohnsandcolitis.org.uk/get-involved/want-to-get-involved-in-research/take-part-in-research/validating-a-questionnaire-on-gastric-sensations 

Thanks everyone, 

Lucy

I'm Ben, 32 years of age and have had Crohn's disease for over 10 years. I had a subtotal colectomy with ileostomy in 2017, after which I gained my PhD in work psychology.

After experiencing the debilitating effects of fatigue as a result of IBD, I have now secured funding from my employer, Nottingham Trent University, to investigate the effects of job demands (e.g. high workload) and resources (e.g. flexible working) on fatigue in people working with IBD.

I am looking for individuals over the age of 18 with an IBD diagnosis who are currently employed or have been employed within the last 12 months to participate in focus groups.

You can register by:

1) directly booking your focus group timeslot using this link: https://nbsntu.eu.qualtrics.com/jfe/form/SV_02RKFqJeP5guZhA

2) scanning the QR code in the poster

3) express your interest using the form on the Crohn's Colitis UK website: https://crohnsandcolitis.org.uk/get-involved/want-to-get-involved-in-research/take-part-in-research/working-with-ibd

Many thanks in advance,

Dr Ben Evans

One of the biggest lessons I've learned along the way is the importance of self-care and self-compassion. It's easy to get caught up in the day-to-day struggles of managing symptoms and medications, but it's equally important to prioritise my mental and emotional well-being.

Through it all, I've found solace in connecting with others who share similar experiences. Whether it's through support groups, online forums, or personal conversations, knowing that I'm not alone in this journey has been incredibly empowering.

If anyone else feels inclined to share their own experiences with Crohn's, I'm all ears. Let's create a space where we can celebrate our victories, commiserate over our setbacks, and uplift each other along the way.

Anyone have any tips or tricks that have helped you reduce flare-ups. I'm looking for advice on diet, stress management, or any alternative therapies. Anything that’s worked for you would be super helpful!!!!!

Thanks a ton for your support!

I've recently been recommended Adalimumab by my gastroenterologist to manage my mild Crohn's disease. While I understand the potential benefits, I'm quite concerned about the side effects, particularly the risk of frequent illness.

I would love to hear from anyone who has personal experience with Adalimumab. Specifically, I'm interested in:

1. Side Effects: What side effects have you experienced, and how have you managed them?
2. Frequency of Illness: Have you found that you're getting ill more often since starting Adalimumab? If so, how do you cope with this?
3. Overall Experience: Has Adalimumab significantly improved your quality of life and symptoms of Crohn's?

Any insights, tips, or personal stories would be greatly appreciated. I'm trying to weigh the pros and cons before making a decision, and your experiences could really help.

Thanks in advance for your advice and support!

However, a few years ago I started taking a 1000mg omega fish oil capsules a day. This was due to reading about omega fats and how they reduce intestinal inflammation. I am not saying that omega 3 is the be-all and end-all as of course there is no cure for Chrohns. But, for 2 years now I have had virtually no diarrhoea or mouth ulcers and I have been really well. Also, amazingly I can seemingly eat what I want which is great. I hope this post is helpful to other sufferers. Regards x

Has anyone had a stem cell transplant to treat their Crohns disease? I've had Crohns for 16 years, been on every medication known to exist and had 3 operations, but nothing helps me.

I've now been referred to a university, to a professor who studies Crohns disease, and he has recommended I have a stem cell transplant. As it is not a mainstream treatment for Crohns, I'm having difficulty finding any information from anywhere about what to expect and if it is worth the risk of what I will need to put my body through.

Hope someone, somewhere can help. Thanks

If anyone has tried this I'd be really interested to know if it worked, and any recipes you can recommend.

Thanks