Travelling with Crohn’s Disease

Travelling with Crohn’s disease can feel like attempting to herd cats while balancing on a tightrope—unpredictable, exhausting, and precarious. The smallest misstep, like forgetting a key item or facing an unexpected delay, can throw everything off balance. The stress of managing symptoms on the go doesn’t just dampen your trip—it can amplify the very issues you’re trying to avoid. Without the right preparation, even a short journey can start to feel like an endurance test rather than an adventure. Thankfully, a well-thought-out plan is like a safety net under that tightrope. With the right preparation, from packing essentials to researching your destination, you can regain control, ease the stress, and focus on making the most of your travels. Because even with Crohn’s, the road can be as enjoyable as the destination.

Smart Packing and Preparation

Your bag is more than just a travel companion—it’s your lifeline. Pack extra doses of medication in multiple bags to stay covered even if one goes astray. Add comfort essentials like a neck pillow, hand sanitiser, and a lightweight blanket for long waits or delays. Healthy snacks, such as bananas, rice cakes, or nuts, keep energy steady without upsetting your stomach. Use zippered pouches to organise essentials so you’re not digging through chaos when you need something urgently.

Think of preparation as pre-travel reconnaissance. Before booking, check reviews for accommodations that highlight private bathrooms and overall comfort. Save contact details for nearby clinics or hospitals on your phone—better to have them ready than scramble later. Some cities even have online maps of accessible facilities, which can ease your mind before you set out.

Your travel mode matters, too. Cars offer maximum flexibility, with stops whenever needed. Trains provide wider aisles and more reliable bathroom access. Cruise ships give you a stable home base with facilities readily available. Flying can work as well, but opt for shorter flights and notify the airline about any special needs, such as pre-boarding or aisle seating.

Try to plan your trip at least 6 to 8 weeks before you go. This gives you time to get health advice, order medicines and arrange any vaccinations you might need¹

Staying Comfortable and Stress-Free when Travelling with Crohn’s Disease

Stress can be an unwelcome travel companion, often aggravating symptoms. Keep it at bay with simple techniques like breathing exercises or mindfulness apps. Carry a small stress-relief item, like a squeeze ball, to use when things get overwhelming. And don’t forget to prioritise rest—long travel days can drain your energy and trigger discomfort. Schedule downtime between activities and pack supportive items like neck pillows or compression socks for long journeys. Treat your body as a VIP—it deserves extra care to keep your trip enjoyable.

Staying hydrated is key to feeling good, but it’s about balance, not quantity. Sip water steadily throughout the day instead of gulping it all at once. In hot climates, supplement with electrolyte powders or hydrating foods like watermelon and cucumber. For cold destinations, hydration can be easy to forget, but it’s just as essential. A collapsible water bottle is a lightweight, reusable option to keep hydration simple on the go.

Be aware that changes in water, food, and climate can upset anyone’s bowels, but those with IBD may be more susceptible to these changes²

Navigating Meals and Movement

Eating away from home can feel tricky, especially at social events or unfamiliar restaurants. Call ahead to discuss dietary needs, avoiding trigger foods and sticking to simple, familiar options. If dining out seems risky, don’t shy away from bringing a snack of your own—most people are understanding when you explain your condition. Buffets can be daunting, so prioritise plain, safe choices rather than experimenting.

Movement is equally important to stay comfortable. Long periods of stillness can lead to cramping or stiffness, so build in time to move. On road trips, stretch at petrol stops. During flights or train rides, walk the aisles or do light stretches like calf raises or shoulder rolls in your seat. Even in a hotel, a short stroll in the lobby or nearby area can do wonders for keeping things flowing.

Travelling with Crohn’s Disease: Bathroom and Emergency Readiness

Access to toilets is a cornerstone of comfortable travel with Crohn’s. Use apps like Flush or SitOrSquat to locate restrooms quickly. If flying, request an aisle seat near the lavatories. For road trips, map out rest stops and petrol stations in advance. For international travel, learn basic restroom-related phrases in the local language—being able to ask “Where is the toilet?” can save time and frustration.

Life can throw curveballs, so be prepared. Pack a “flare-up kit” in your carry-on with essentials like extra medication, electrolyte tablets, wet wipes, and a change of clothes. For international trips, bring a translated medical note explaining your condition and prescriptions. Think of this kit as your travel safety net—it’s better to be overprepared than caught off guard.

Looking After Yourself

Loose, comfortable clothing can make a big difference during travel. Avoid tight waistbands or fabrics that could irritate your abdomen. And don’t overlook the value of good travel insurance—pick a policy that explicitly covers pre-existing conditions. Double-check the details for emergency evacuation coverage, and keep a digital copy of the policy accessible on your phone.

Consider obtaining a letter from your doctor describing your medical condition and medications, particularly for controlled substances or injectable drugs³

Travelling with Crohn’s disease doesn’t have to feel like a battle. With smart packing, thoughtful preparation, and an emphasis on comfort, you can turn your trip into a memorable and enjoyable experience. Reclaim the joy of exploring new places by focusing on what works for your body—and enjoy the journey with confidence.

Remember, with proper planning and preparation, many people with IBD travel extensively and without limitations⁴. By considering potential challenges in advance, you can prepare to manage any flare-ups and enjoy your holiday!

Answers to Common Questions About Travelling with Crohn’s Disease

What are the best tips for travelling with Crohn’s disease?

If you’re planning a trip with Crohn’s disease, pack essential medications, research accessible bathrooms, and opt for accommodations with private facilities. These simple tips can help you manage Crohn’s symptoms while travelling and ensure a more comfortable journey.

How do I manage food and drink while travelling with Crohn’s?

Managing your diet while travelling with Crohn’s is easier when you avoid common trigger foods, pack safe snacks, and stay hydrated. Stick to simple, bland meals, and carry a refillable water bottle to maintain hydration on long trips.

Should I get travel insurance for Crohn’s disease?

Yes, travel insurance for pre-existing medical conditions like Crohn’s disease is a must. It protects you against unexpected medical emergencies while ensuring peace of mind.

How can I reduce stress while travelling with Crohn’s?

Reducing travel stress is key to managing Crohn’s disease. Practice mindfulness, schedule breaks for stretching, and communicate with travel companions about your needs.