Navigating life with Crohn’s disease can feel like a constant problem – a puzzle with missing pieces and a never-ending stream of questions. You crave solutions, a sense of control, and a connection with others who understand your journey. That’s where the Crohn’s forum steps in – your one-stop online community designed to empower you on your path to well-being.


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Welcome to the Crohn’s Disease UK Forum, your online community for discussing all aspects of Crohn’s disease, ulcerative colitis, and related conditions. Whether you’re seeking advice on medications and treatments, sharing personal experiences, or exploring alternative therapies, our forum is here to support you every step of the way.

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Hello people!

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New Member
Joined: 4 years ago
Posts: 1
Topic starter  

Hi, im new to this board I just came across it after googling trying to find an ongoing forum for crohns sufferers in the uk, as most of the other ones i have found are mainly american or are not used that often.  I'd just like to be able to talk to people who actually have the same disease so no what its like.

Im 25, I was diagnosed with crohns disease 5 years ago but had symptoms a few years before that just kept putting off going to the doctors. First I was put on steroids and pentasa which made me feel so much better. Then after tapering off the steroids i had to try azaithoprine (cant remember how u spell it), which didnt work and gave me a really bad back, so then i changed to mercaptopurine which made me feel a bit better for a while but i was sick nearly everyday for a year, so went back on the steroids and am now on methotrexate which i think is ok. Have also been on the pentasa for the whole 5 years, i asked to stop it once because i didnt feel it was doing anything but i was assure/persuaded by the IBD nurse that it was good for the type of crohns that i have.

My crohns is controlled alot on diet, i cant eat any fruit or any vegetables without going into a flare, which really bothers me as i have the most unhealthy diet ever (i also dont eat meat as i dont like it- never have.) i've been to a nutritionist (think thats the name of them- maybe not dunno lol) and i ve spoken to the IBD nurse but neither thinks its a problem that i have such an unheathly diet.

Anyway sorry ive babbled on a bit, but general i feel ok most of the time, but never forget that i have this stupid disease as its constantly there everyday.

Also im doing the crohns and colitis walk in london in may to raise money and awareness, are any of you?? 

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New Member
Joined: 4 years ago
Posts: 1

im a new member here , single mum with two kids and really struggling with my crohns pain , taking painkillers to get to sleep atm .

had to go part time with my job and can’t pay the bills , can anyone help me with advice as how to get a little disability benefit to subsidise my family as I’m desperate .

thank you so much 




Navigating Life with Crohn’s: Find Your Support Network at the Crohn’s Disease UK Forum

Living with Crohn’s disease can feel isolating at times. You might grapple with questions, frustrations, and a yearning to connect with others who understand your journey. Here’s where the Crohn’s Disease UK Forum steps in – your one-stop online community for everything Crohn’s and Inflammatory Bowel Disease (IBD) related.

Lost in the Crohn’s Maze? Find Your Way with Our Forum

Whether you’re newly diagnosed with Crohn’s or a seasoned IBD warrior, our forum caters to everyone on the spectrum.

  • Diagnosed with Crohn’s? You’re not alone. Our forum is a haven for those seeking guidance on managing symptoms, understanding medications, and navigating treatment options.
  • Family and Friends Offering Support? Gain valuable insights from others who’ve walked a similar path. Learn how to best support your loved one and access resources to navigate this journey together.
  • Undiagnosed and Seeking Answers? Our forum provides a safe space to share your concerns and experiences. Connect with others who can relate and find reliable information to guide your next steps.

The Crohn’s Forum: Building Strength Through Shared Experiences

The Crohn’s Disease UK Forum goes beyond simply offering information. It fosters a vibrant community built on empathy, encouragement, and shared experiences. Here’s what makes our forum so special:

  • Direct Access to a Wealth of Knowledge: Connect with a network of patients, caregivers, healthcare professionals, and fellow Crohn’s warriors. Get answers to your burning questions, from medication side effects to coping strategies.
  • Open and Honest Conversations: Share your experiences in a supportive environment. No question is too big or too small. Find solace in knowing you’re surrounded by people who understand what you’re going through.
  • Support Beyond Medical Matters: Life with Crohn’s doesn’t stop at medication. Our forum delves into all aspects of living well with the condition. Share recipes, discuss the emotional impact, or simply connect with others for a virtual cuppa and a chat.
  • Empowerment Through Shared Wisdom: Learn from the triumphs and struggles of others. Discover coping mechanisms, alternative therapies, and practical tips for managing your condition on a daily basis.

The Power of Connection: Your Unique Voice Matters In The IBD Forum

The Crohn’s Disease UK Forum isn’t just about receiving support – it’s about giving back as well. Here’s how your participation strengthens the community:

  • Become a Beacon of Hope: Share your personal story and inspire others on their Crohn’s journey. Your experiences can offer invaluable support to those just starting out.
  • Offer Your Expertise: Have you found a fantastic dietician or a particularly effective stress-management technique? Share your knowledge and empower others to take control of their health.
  • Build Meaningful Connections: Forge lasting friendships with others who understand what you’re going through. Find your support system and build a network of people who truly “get it.”

Join the Conversation Today: It’s Time to Thrive, Not Just Survive

The Crohn’s Disease UK Forum is more than just a forum – it’s your online lifeline, a support group, and a community cheering you on every step of the way. Take charge of your Crohn’s journey, connect with others who understand, and start living life to the fullest.

Ready to find your voice and connect with your Crohn’s community? Sign up for the Crohn’s Disease UK Forum today!

P.S. We encourage you to browse existing threads, search for specific topics, or even start your own discussion. Let’s create a supportive and informative space together!

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