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12 yr old Son with Crohns

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Joined: 4 years ago
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Hello everyone, I am new here, but in desperate need of some guidance from people 'in the know' about Crohns. My Son was diagnosed a week after his 12th birthday, he was given 6 weeks of Modulen through a nasal tube, which initially seemed to work.

Barium x-ray showed otherwise, still had some inflammation. Now on Month 4 of Budesonide steroids, but down to 1 a day. He missed so much of end of Year 7 at secondary, was trying to do half days, now he is struggling with getting back into a new Year 8. Not many close friends, but a wonderful year tutor.

On a good day, he seems like my Son again. On a bad day, we daren't leave the house. I am divorced from his father, and the kids live with me but see their Dad at weekends. Hence most of the caring and worrying falls on me. Don't think most people understand how it really affects ALL of us.

Consultant says my Son is growing and putting on weight, so they don't want to see him again till December, but I KNOW as his Mother that he's still not as well as they think. He still gets griping stomach pains and for the last 2 days, has had dizzy headaches in the mornings. This Crohns came out of nowhere months ago and its knocked me for six, let alone what its done to my poor Son.

How do we see a light at the end of the tunnel? Many thanks in advance for your help.


Navigating Life with Crohn’s: Find Your Support Network at the Crohn’s Disease UK Forum

Living with Crohn’s disease can feel isolating at times. You might grapple with questions, frustrations, and a yearning to connect with others who understand your journey. Here’s where the Crohn’s Disease UK Forum steps in – your one-stop online community for everything Crohn’s and Inflammatory Bowel Disease (IBD) related.

Lost in the Crohn’s Maze? Find Your Way with Our Forum

Whether you’re newly diagnosed with Crohn’s or a seasoned IBD warrior, our forum caters to everyone on the spectrum.

  • Diagnosed with Crohn’s? You’re not alone. Our forum is a haven for those seeking guidance on managing symptoms, understanding medications, and navigating treatment options.
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The Crohn’s Forum: Building Strength Through Shared Experiences

The Crohn’s Disease UK Forum goes beyond simply offering information. It fosters a vibrant community built on empathy, encouragement, and shared experiences. Here’s what makes our forum so special:

  • Direct Access to a Wealth of Knowledge: Connect with a network of patients, caregivers, healthcare professionals, and fellow Crohn’s warriors. Get answers to your burning questions, from medication side effects to coping strategies.
  • Open and Honest Conversations: Share your experiences in a supportive environment. No question is too big or too small. Find solace in knowing you’re surrounded by people who understand what you’re going through.
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Join the Conversation Today: It’s Time to Thrive, Not Just Survive

The Crohn’s Disease UK Forum is more than just a forum – it’s your online lifeline, a support group, and a community cheering you on every step of the way. Take charge of your Crohn’s journey, connect with others who understand, and start living life to the fullest.

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